HOW WE HELP

Our goal is to transform healthcare delivery for individuals with A/ID by providing information for effective care and effective health policy. Above all, we aim to prevent unnecessary suffering from ineffective and inexpert healthcare.

Why Do This?

People with intellectual disabilities often have unusual disorders and complex medical and behavioral health issues. There are very few expert providers available to care for the 3% of Americans who live with A/ID. Despite very large expenditures- the Surgeon General has estimated that healthcare for people with ID requires approximately 15% of the average state’s Medicaid budget – the majority of patients do not receive expert care.   To make matters worse, providers are often pressed for time when caring for an individual who has difficulty communicating, and they rarely have the information necessary to make an accurate assessment.

Our system uses information technology to help extend expertise by providing relevant information to caregivers and patients when they need it: when a problem arises, and at the point of care.

Our Stakeholders

For clients and guardians, we help give peace of mind in knowing that each individual’s health and wellness is monitored. Issues we identify are given prompt, correct attention, and we recheck to be sure that the proper care was received.

For residence providers and caregivers, we provide notification of potential health issues, and we assist with getting each client appropriate, responsive medical and behavioral support. We can provide trend information about the wellness of clients, to help each program demonstrate its excellent care.

For physicians and other providers, we help make sure that concise, accurate information is immediately available, so that visit time can be focused on the patient rather that searching for data. We also provide clinical support to help with the best management approach for each patient.

For state agencies, we assure that each client gets timely, expert, accountable care. We make care more affordable, by helping support all types of providers in making the best clinical judgments. We also provide overall trend information about client health and wellness and can quickly identify the individuals with health and healthcare issues that need focused attention.